Communication Skills Training at Johns Hopkins Medicine: Empowering Cancer Patients and Caregivers

Intervention Area: Johns Hopkins Clinical Research Network (JHCRN)

BALTIMORE – A multi-disciplinary team from Johns Hopkins Medicine has developed an innovative communications training program designed to encourage active participation in managing cancer-related care. Unlike existing training models, which focus almost exclusively on patients or physicians, this intervention combines the use of technology and long standing research on medical communication to reach all real world participants in a medical conversation. The program involves patients, their caregivers, and physicians, following the notion that all participants in a conversation have the potential to influence its focus and content, and caregivers often have an active role in managing a loved one’s cancer care.

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Massachusetts General Hospital Cancer Center: Patient Navigation as the Cornerstone of Cancer Care

Intervention Area: Northeastern Massachusetts

BOSTON – Most cancer diagnoses begin with a primary care physician (PCP), with PCPs remaining involved throughout the continuum of cancer care. According to a recent study, more than 50% of PCPs had a role in shaping treatment preferences for individual patients. After receiving an initial diagnosis from primary care, patients are usually transferred to oncology for further testing and treatment. If this transition is not properly coordinated, it is possible for vital information to be overlooked, or for patients to miss crucial treatment stages. This is especially true for underserved and vulnerable patient populations, who face significant socio-economic barriers to getting the care they need. The Massachusetts General Hospital Cancer Center’s intervention aims to improve care for newly diagnosed patients on multiple fronts: the TopCare registry can help detect patients in need of additional support, and Patient Navigators are empowered to step in and act as a conduit between primary care and oncology services.

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Northwestern University Feinberg School of Medicine: The Right Care at the Right Time.

Intervention Area: Chicagoland Area

CHICAGO – As cancer treatments evolve and grow in complexity, it can be very difficult for cancer patients to receive continuous, high-quality care: while the majority of cancer treatment journeys begin with primary care physicians, patients typically move between a wide variety of facilities and specialties throughout the course of their care. They may receive surgery at one hospital, get transferred to a different facility for chemotherapy, and then go back to primary care physicians for information on survivorship care. With each transfer, there is a potential for miscommunication, resulting in care delays and frustration for patients and their families. This fragmentation is especially dangerous for minority and underserved populations, who are more likely to be diagnosed with cancer at later stages (cancers are likely to be more aggressive), have financial challenges, lower levels of social support, poor nutrition, and low physical activity levels.

Northwestern University Feinberg School of Medicine developed the 4R (the Right information and Right care for the Right patient at the Right time) model to provide patients with a clear project plan of their treatment, regardless of how many facilities may be involved in their care or their stage of treatment. 4R care plans include information on cancer care, managing their care alongside other chronic illnesses independent of their cancer diagnosis (comorbidities), preventive care, supportive services, and lifestyle choices. The goal of this intervention is to optimize the coordination, flow, consistency, quality and satisfaction of care and communication among the care team, patients, and caregivers (family members, etc.). With the care plan serving as an “anchor”, patients will be more likely to make use of support services necessary and appropriate for optimal health, regardless of location of care, patient income, race/ethnicity, or other factors.

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The Georgia Cancer Center for Excellence at Grady Health System: Treating People, Not Numbers

Intervention Area: Atlanta Metro Area

ATLANTA – The health care system is complex and often very fragmented. Navigating these increasingly advanced structures requires an expert guide. Patient navigators make sure that patients are getting all the care they need, when they need it most. They assist in setting up appointments, making sure patients have all documentation needed to move forward; they follow patients throughout treatment and assist in creating a survivorship care plan; they provide crucial psychological support through the most distressing phases of cancer treatment. The work of patient navigators is especially vital for underserved and vulnerable populations, who often lack a formal support system and may be overwhelmed by the highly technical nature of modern health care facilities.

The Georgia Cancer Center for Excellence (GCCE) has offered a patient navigator program since 2003, designed exclusively for breast cancer patients and facilitated by lay navigators who are breast cancer survivors themselves. GCCE also has a robust partnership with the American Cancer Society (ACS), which provides a dedicated, full-time patient resource navigator and a part-time client navigator to work with patients across all cancer sites. Thanks to support from the Merck foundation, GCCE has since been able to expand their navigator program, developing a protocol to match newly diagnosed patients with a nurse navigator. Patients are connected to a navigator as soon as they receive test results that indicate a suspicious or positive result. The nurse navigation program focuses on areas with the highest number of patients, lung/thoracic and breast/gynecology, however navigation services are available to all cancer patients.

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NASEM Releases New Report on Cancer Control

“The health care system is a federation of millions of entrepreneurs with no one in charge. No single entity can command change.”

The National Academies of Sciences, Engineering, and Medicine, recently released a consensus report that outlines several key strategies to implement a comprehensive national cancer control plan. This ambitious program aims to set a precedent that could help inform the control of other diseases. The study was undertaken by the Committee on a National Strategy for Cancer Control in the United States with support from the National Institutes of Health, the Centers for Disease Control and Prevention, and the American Cancer Society. Alliance Co-Principal Investigator Electra Paskett, PhD, served as a member of the cancer control committee.

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How Technology is Streamlining Transition of Care

The Johns Hopkins Bloomberg School of Public Health and the Johns Hopkins University School of Medicine are building a technology-based solution to tackle an ongoing challenge in cancer care delivery: effective transition of care (ToC). As Dr. Ahmed Hassoon, Co-Investigator with the Alliance to Advance Patient-Centered Cancer Care, explains, cancer patients often feel lost when they complete their active treatment; they move from intense monitoring and care to a destabilizing transition into survivorship. Studies have shown that patients in transition have a high risk of being readmitted to the hospital following their discharge, with rates of 26 percent for palliative medicine and 27 percent for general medical oncology.

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Alliance to Advance Patient-Centered Cancer Care Webinar

The Oncology Care Model: Implications for Cancer Care Delivery and Payment Reform

Cancer care is very expensive, and the cost is rising at an unsustainable rate. The Centers for Medicare & Medicaid Services (CMS) reported that medical expenditures related to cancer are expected to stretch to $158 billion in the year 2020. Cancer patients receiving systemic therapy represent the group with the highest costs. The Oncology Care Model is the largest medical subspecialty alternative payment model developed and administered by the Center for Medicare and Medicaid Innovation. This pilot program, launched in July 2016, aims to improve the delivery of cancer care while controlling costs by holding providers responsible for the total cost of care. Many of the changes in care delivery required to succeed in this program involve fundamental practice transformation. In this webinar, Dr. Michael Kolodziej will discuss the rationale for this model, results to date, as well as a forecast for the ultimate results of the model. He will also project the next stage of cancer care payment reform.

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NNRT Releases Issue Brief on Patient Navigation

In January 2019, the Policy Task Group for the National Navigation Roundtable released an issue brief entitled, “Patient Navigation in Cancer Care: Review of Payment Models for a Sustainable Future.”  This resource outlines the various ways in which patient navigation services are currently funded. Case examples of short-term, long-term, and alternative funding models are given as well as their respective benefits and challenges. Finally, this document provides several recommendations for policy makers, payers, and stakeholders to improve payment models and to promote the sustainability and expansion of patient navigation in cancer care.

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World Cancer Day 2019: I Am and I Will

Cancer causes about 1 in every 6 deaths worldwide, more than AIDS, tuberculosis, and malaria combined. Today, it is the second-leading cause of death (following cardiovascular diseases) worldwide.

Today is World Cancer Day, and the American Cancer Society has dedicated coverage of events around the globe and updates on the state of cancer research.

Find more information on the global cancer burden and the fight against cancer here.