Helpful Links
- Choi, Y., Radhakrishnan, A., Mahabare, D., Patole, S., Dy, S. M., Pollack, C. E., ... & Peairs, K. S. (2019). The Johns Hopkins Primary Care for Cancer Survivor Clinic: lessons learned in our first 4 years. Journal of Cancer Survivorship, 1-7. https://doi.org/10.1007/s11764-019-00816-3
- LaGrandeur, W., Armin, J., Howe, C. L., & Ali-Akbarian, L. (2018). Survivorship care plan outcomes for primary care physicians, cancer survivors, and systems: a scoping review. Journal of Cancer Survivorship, 12(3), 334-347.https://doi.org/10.1007/s11764-017-0673-5
- Marshall, C. A., Curran, M. A., Brownmiller, G., Solarte, A., Armin, J., Hamann, H. A., ... & Weihs, K. L. (2018). Oregon's Familias en Acción replicates benefits for underserved cancer co-survivors through Un Abrazo Para la Familia. Psycho-oncology, 27(10), 2405-2411.https://doi.org/10.1002/pon.4841
- Marshall, C. A., Curran, M. A., Trejo, J., Gonzalez, A. A., Armin, J., Hamann, H. A., ... & Garcia, F. A. (2020). The Evolution of Un Abrazo Para La Familia: Implications for Survivors of Cancer. Journal of Cancer Education: the Official Journal of the American Association for Cancer Education. https://doi.org/10.1007/s13187-020-01737-x
- Marshall C. A. (2020). Reflections: a Daughter's Experience of Parental Cancer and the Beginnings of Un Abrazo Para La Familia™. Journal of Cancer Education: the Official Journal of the American Association for Cancer Education, 1–4. Advance online publication. https://doi.org/10.1007/s13187-020-01782-6
- Marshall, C. A., Trejo, M. J., Trejo, J. I., Armin, J. S., Badger, T. A., & Weihs, K. L. (2021). Implementation of Un Abrazo Para La FamiliaTM in southern Arizona with extension to survivors and assessment of effects on distress. Families, Systems, & Health, 39 (2), 269-281. https://doi.org/10.1037/fsh0000617
- Naughton, M. J., Salani, R., Peng, J., Backes, F., O'Malley, D. M., Cohn, D. E., ... & Paskett, E. D. (2019). Feasibility of text-based symptom monitoring of ovarian and endometrial patients during treatment. Journal of Clinical Oncology 37(15_suppl), e18299-e18299. https://doi.org/10.1200/JCO.2019.37.15_suppl.e18299
- Naughton, M. J., Salani, R., Peng, J., Lustberg, M., DeGraffinreid, C., Moon, J., ... & Paskett, E. D. (2020). Feasibility of implementing a text-based symptom-monitoring program of endometrial, ovarian, and breast cancer patients during treatment. Quality of Life Research, 1-14. https://doi.org/10.1007/s11136-020-02660-w
- Percac-Lima, S., Warner, E. T., Whited, E. C., Irwin, K. E., Navarrete, A., Benjamin, C., ... & Moy, B. (2020). Abstract PO-077: Impact of COVID-19 on patient navigation for cancer treatment. Cancer Epidemiol Biomarkers Prev December 1 2020 (29) (12 Supplement) PO-077; DOI: 10.1158/1538-7755.DISP20-PO-077
- Simon, M. A., Trosman, J. R., Rapkin, B., Rittner, S. S., Adetoro, E., Kirschner, M. C., ... & Weldon, C. B. (2020). Systematic Patient Navigation Strategies to Scale Breast Cancer Disparity Reduction by Improved Cancer Prevention and Care Delivery Processes. JCO oncology practice, JOP-19. https://ascopubs.org/doi/abs/10.1200/JOP.19.00314
- Stone, J., Moskowitz, G. B., Zestcott, C. A., & Wolsiefer, K. J. (2020). Testing active learning workshops for reducing implicit stereotyping of Hispanics by majority and minority group medical students. Stigma and Health, 5 (1), 94–103. https://doi.org/10.1037/sah0000179 (Supplemental)
- Ver Hoeve E., Ali-Akbarian L., Price S., Lothfi N., Hamann H. Patient-reported financial toxicity, quality of life, and health behaviors in insured US cancer survivors [published online ahead of print, 2020 May 3]. Support Care Cancer.2020;10.1007/s00520-020-05468-z. https://doi.org/10.1007/s00520-020-05468-z
- The Academy of Oncology Nurse & Patient Navigators (AONN+)
- American Cancer Society
- American Psychosocial Oncology Society
- American Society of Clinical Oncology
- Association of Community Cancer Centers
- Cancer.Net
- International Society of Nurses in Cancer Care
- National Cancer Institute
- National Comprehensive Cancer Network
- National Navigation Roundtable
- Oncology Nursing Society
- World Cancer Day
Alliance Video Profiles
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It Takes a Village to Deliver High Quality Cancer Care
The Alliance to Advance Patient-Centered Cancer Care aims to increase access to care and reduce disparities by bringing together grantee sites and community partners from all over the country. By working together as a collaborative, Alliance sites are implementing targeted programs and measuring their impact, informing the conversation around patient-centered cancer care in the process. Learn more here: http://bit.ly/33R8uhM -
University of Arizona Cancer Center: Embracing Low-Income Families
As part of their commitment to providing effective patient-centered care, the UACC has been a part of an effort to expand access to the Un Abrazo Para La Familia™ [Embracing the Family] intervention to include patients treated at the Cancer Center and families located within the UACC’s catchment area. Learn more here: http://bit.ly/31PNIyg -
Johns Hopkins Medicine: Empowering Cancer Patients and Caregivers
A multi-disciplinary team from Johns Hopkins Medicine has developed an innovative training program designed to encourage active participation in managing cancer-related care. This intervention combines the use of technology and long-standing research on medical communication. Learn more here: http://bit.ly/2lSlwvp -
Massachusetts General Hospital Cancer Center: Patient Navigation as the Cornerstone of Cancer Care
The Massachusetts General Hospital Cancer Center has implemented a patient navigation program to improve cancer care and transitions of care within their cancer center. Learn more here: http://bit.ly/2kOYWDC -
The Northwestern University Feinberg School of Medicine: the Right Cancer Care at the Right Time
Researchers at Northwestern Medicine with AllianceChicago have developed a 4R care plan, an innovative solution providing the Right Information and Right Treatment to the Right Patient at the Right Time. Learn more here: http://bit.ly/2lTi3g4 -
The Georgia Cancer Center for Excellence at Grady Health System: Treating People, Not Numbers
The GCCE has recently expanded their navigator program, developing a protocol to match newly diagnosed patients with a nurse navigator. Patients are connected as soon as they receive a positive or suspect diagnosis. Learn more here: http://bit.ly/2m0RPIj
Webinars
November 9, 2021 Alliance for Health Policy Summit: Advancing Patient-Centered Cancer Care
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Supportive Cancer Care Models and Equity – Reaching the Underserved through Telehealth
The Alliance to Advance Patient-Centered Cancer Care is hosting supportive care practitioners from the University of Arizona Cancer Center and the Massachusetts General Hospital Cancer Center. They will share actionable insights into reaching vulnerable and underserved patients through telehealth. This program is perfect for social workers, navigators, mental health counselors, cancer researchers, and all supportive care providers in the field of oncology and beyond.
Presented by Fernanda Corella, LAC, Mira Oravcova-Mejia, MEd, and Ausubel Pichardo, BA -
Evaluating the Sustainability of Oncology Navigation with the AONN+ Navigation Metrics Toolkit
The Alliance to Advance Patient-Centered Cancer Care is hosting Monica Dean, HON-OPN-CG, Danelle Johnston, MSN, RN, HON-ONN-CG, OCN, and Tricia Strusowski, MS, RN, who will be presenting the AONN+ 2020 Navigation Metrics Toolkit. They will demonstrate how this transformative work can help define oncology navigation practice and outcomes, highlighting the value of patient navigation throughout the cancer care continuum. This event is open to patient navigators, clinicians, practice administrators, and health care executives – anyone who might be looking to support patient navigation programs in a clinical setting.
Presented by Monica Dean, HON-OPN-CG, Danelle Johnston, MSN, RN, HON-ONN-CG, OCN, and Tricia Strusowski, MS, RN -
Deactivating Implicit Bias, Eliminating Treatment Disparities in Oncology: The Road Ahead
The Alliance to Advance Patient-Centered Cancer Care is bringing together two experts to discuss treatment disparities in clinical oncology and beyond, highlighting key interventions and relevant research. Dr. Jeff Stone of the University of Arizona will provide a comprehensive overview of implicit bias, illustrating how verbal and non-verbal behavior can affect patient-provider communication, with a special focus on Hispanic and Latinx patients in Southern Arizona. From the Mount Sinai Health System, Dr. Cardinale Smith will discuss her experience working to eliminate barriers to care in palliative care settings, where Black, Indigenous, and People of Color (BIPOC) experience significant issues accessing hospice care and adequate pain management.
Presented by Cardinale Smith, MD, PhD, and Jeff Stone, PhD -
Cancer Care and Health Equity in the COVID-19 Era.
Strategies to Advance Patient-Centered Cancer Care.
This webinar is bringing together experts from the Georgia Cancer Center for Excellence at Grady Health System, the Massachusetts General Hospital Cancer Center, the Ohio State University Comprehensive Cancer Center, and The National Comprehensive Cancer Network® (NCCN®) to provide a comprehensive report on the reality of the pandemic from the front lines. Together, they will outline emerging policy implications towards a safe and equitable future for all. -
Advancing Health Equity with Federally Qualified Health Centers (FQHCs): An Oncology Perspective
Promoting health equity is an important objective for most oncology and public health researchers; however, developing an intervention designed to move beyond the written word and into clinical practice can be a challenging process. This webinar explored what it means to work with FQHCs on pragmatic cancer-based interventions, bridging the gap between academic research and the needs of community health centers.
Presented by Julie Armin, PhD, Gloria D. Coronado, PhD, and Nancy Johnson, RN, MSN, MS, PhD -
Securing Strategic Partnerships that Improve Access to Cancer Care
Presented by
Sahirah Khabeer, MPA, MHRM
Patient Resource Navigator
American Cancer Society at the Georgia Cancer Center for Excellence at Grady Health System
Jennifer Moon, MPH, CCRP, CHES
Program Manager
The Ohio State University Comprehensive Cancer Center
Makeeta Rayton, MSW
Oncology Social Work Supervisor,
Georgia Cancer Center for Excellence
Assisting underserved patients is an ongoing challenge for many cancer centers across the country. Two institutions on the front lines of achieving health equity have demonstrated creative solutions that improve access to cancer care for underserved patients in a tangible way. The Ohio State University James Comprehensive Cancer Center is able to provide smart phones for patients to monitor symptoms and remain in close contact with their care team at no added cost. The Georgia Cancer Center for Excellence at Grady Health System has secured several reliable transportation options for their patients. Both organizations have leveraged key partnerships with for- and not-for-profit organizations looking to serve the public good.
In this webinar, representatives from both sites will share their journey of securing and maintaining their partnerships, illustrating how they can enhance patient-centered cancer care. -
The Oncology Care Model: Implications for Cancer Care Delivery and Payment Reform
Presented by Michael Kolodziej, MD
Vice President and Chief Innovation Officer
ADVI Health
Cancer care is very expensive, and the cost is rising at an unsustainable rate. The Centers for Medicare & Medicaid Services (CMS) reported that medical expenditures related to cancer are expected to stretch to $158 billion in the year 2020. Cancer patients receiving systemic therapy represent the group with the highest costs. The Oncology Care Model is the largest medical subspecialty alternative payment model developed and administered by the Center for Medicare and Medicaid Innovation. This pilot program, launched in July 2016, aims to improve the delivery of cancer care while controlling costs by holding providers responsible for the total cost of care. Many of the changes in care delivery required to succeed in this program involve fundamental practice transformation. In this webinar, Dr. Michael Kolodziej will discuss the rationale for this model, results to date, as well as a forecast for the ultimate results of the model. He will also project the next stage of cancer care payment reform. -
Life After Grant Funding: Making the Business Case for Your Intervention
Many grant proposals require a plan for sustainability, carrying the expectation that a funded program will continue to be viable once the start-up resources have run out. This can be a challenging proposition for medical researchers, who have to run their interventions while identifying all direct and indirect financial benefits of their work. Drawing from his international research experience, Dr. J. Brian Cassel will discuss his approach to developing long-term funding models in palliative care, presenting universal considerations that could assist researchers in maintaining clinical and quality-improvement programs that expand access to care. -
![Bridging Primary Care and Oncology in the Era of Patient-Centered Cancer Care [Full Screen Version]](https://i0.wp.com/i.ytimg.com/vi/e2eBOknKnh4/sddefault.jpg?w=778&ssl=1)
Bridging Primary Care and Oncology in the Era of Patient-Centered Cancer Care [Full Screen Version]
The role of primary care in cancer control is expanding, due in part to an increased emphasis on cancer care delivery that is respectful of and responsive to individual patient preferences, needs, and values (Committee on Quality of Health Care in America. Institute of Medicine, 2001). Current research data shows that Primary Care Physicians (PCPs) have a positive impact on early cancer diagnosis, treatment outcomes, and survivorship support, improving the quality of life of cancer patients across the continuum of care (Coburn & Collingridge, 2015).
In this context, The Alliance to Advance Patient-Centered Cancer Care is hosting a webinar titled “Bridging Primary Care and Oncology in the Era of Patient-Centered Cancer Care: Challenges, Opportunities and Lessons Learned”, presented by Dr. Peairs of the Johns Hopkins Health Care & Surgery Center and Dr. Wallner of the University of Michigan. Leveraging their extensive clinical and ambulatory experience, they will present successful strategies and ongoing challenges in the integration of primary care and oncology care. Attendees will be able to present their own questions and interact with the hosts and other event participants. The live meeting is open to all researchers and practitioners eager to learn more about transition of care, improving cancer care delivery, and cancer survivorship. -
A report from the National Navigation Roundtable: the state of patient navigation today
Presented by Monica Dean, Director, National Navigation Roundtable
with Elizabeth A Calhoun, PhD, MEd and Sanja Percac-Lima, MD, PhD
According to the American Medical Association, a patient navigator is someone who provides personal guidance to patients as they move through the health care system. Patient navigators may have professional medical, legal, financial, or administrative experience, or they may have personally faced health care-related challenges and want to help others who find themselves in similar situations.
Patient navigators work with patients and families to help with many different needs associated with the health care system. This may include helping with insurance problems, finding doctors, explaining treatment and care options, going with patients to visits, communicating with their health care team, assisting caregivers, and managing medical paperwork.
In 2017, the American Cancer Society (ACS) launched the National Navigation Roundtable, a collaboration of organizations dedicated to achieving health equity and access to quality care across the cancer continuum through effective patient navigation. The Alliance to Advance Patient Centered Cancer Care is proud to host Monica Dean, director of the National Navigation Roundtable at the American Cancer Society, who will be presenting a webinar titled “A Report from the National Navigation Roundtable: The State of Patient Navigation Today”. The event will feature a panel discussion with Dr. Sanja Percac-Lima of the Massachusetts General Hospital and Dr. Elizabeth Calhoun of the University of Arizona. Attendees will be able to present their own questions and interact with the hosts and other event participants. The live meeting is open to all professionals eager to learn more about the National Navigation Roundtable and patient navigation.
Alliance Infographics
